Denver, Colo – Melissa Tumblin, a Denver mother of a child with microtia, has just launched EarCommunity.com, devoted to providing support and resources to individuals and families living with microtia and aural atresia, and their associated syndromes, including Hemifacial Microsomia, Treacher Collins Syndrome, and Goldenhar Syndrome.
In the United States, one in every 6,000 children is born with microtia and aural atresia, which are congenital deformities of the ear. Sometimes characterized as “little ear,” the condition is often accompanied by hearing loss and other syndromes that affect the individual’s quality of life.
EarCommunity.com provides practical information, advocacy resources, surgical and technology solutions, inspirational stories, news, and the latest research.
The website also allows families and individuals to connect with others inside a supportive online community. The quality and depth of the information and resources available at EarCommunity.com may also be a valuable portal for medical professionals seeking the newest information on these rare conditions of the ear.
Access to the website’s continually updated content is global and allows instant translation to any of 48 languages. In addition to the convenience and accessibility provided by the new website, resources and information exchanged within the community are saved, indexed, and archived, creating a powerful bank of information not previously available.
EarCommunity.com was founded by Tumblin, whose child, Ally, was born with microtia. Tumblin has reportedly researched and gathered more than 100 web pages of highly visual content that includes articles, photos, videos, and online forums.
Like many children with microtia and atresia, Ally also experiences some degree of hearing loss. The minimal amount of information and support available following Ally’s diagnosis led Tumblin to seek the guidance of leading physicians, surgeons and audiologists who could help her acquire the accurate and authoritative information she needed to secure the best outcome for her daughter.
More information about available microtia and atresia resources, information, and events is available at EarCommunity.com or the microtia and atresia Support Group on Facebook.